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Patient Partner Research Opportunity

Teens with lived experience of concussion and their caregivers needed for research working group.

Teen Concussion Recovery Working Group

Closed Recruitment

Health Areas

Traumatic Brain Injury , Other Rehabilitation Intervention, Digital Health, Rural Health

Opportunity Purpose

The MyGuide Concussion-Teen Edition website was created to help teens recover after concussion. The website addresses teen-specific concerns and can be used by teens and their families, as well as by teachers and coaches. Teens with lived experience of concussion, along with their caregivers, are invited to join a virtual working group to review the website and help to develop a research study investigating its acceptability and utility.

Details

Teens and their caregivers will attend five virtual meetings with GF Strong clinicians and researchers to: (1) identify important questions to ask study participants about the MyGuide Concussion-Teen Edition website; (2) ensure that study materials are understandable to teens and caregivers; (3) develop a study recruitment plan; (4) generate ideas about how the website can be better designed based on data collected from the study; and (5) decide how to share the research findings with the community. To prepare for meetings, patient partners may be asked to review materials (e.g., the existing MyGuide Concussion-Teen Edition website, recruitment flyers, research summaries).

location

Vancouver Island / Coast

Lower Mainland

Thompson - Okanagan

Kootenay

Cariboo

North Coast and Nechako

Northeast

recruitment end date

2024-01-29

eligibility

Age: 12 Years - 100 Years Old

Research Team Information

Principal investigator

Molly Cairncross

health authority affiliation

Vancouver Coastal Health

academic affiliation

Simon Fraser University

collaborators

Jaqueline Purtzki

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Privacy and Security

REACH BC will not release any of your personal information to third parties, participating organizations and/or other institutions. Your information will only be available to the researcher(s) after you indicate interest in being contacted about a particular study.

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