ReachBC logo

Research Study

Storytelling and Audio Diaries for Dementia Caregiving

Does sharing stories and experiences of dementia caregiving help improve quality of life?

Closed Recruitment

Health Areas

Dementia , Other General Health , Other Men’s Health , Other Mental Health , Aging

Study Purpose

This study hopes to capture, explore, and share the experiences of dementia caregiving through personal audio diaries and online caregiver support groups. We are investigating the combined impact of social support and storytelling on the quality of life and wellbeing of dementia caregivers and their care partners. Findings from this project will be shared with the larger dementia community through a podcast series to spread awareness.

Details

Caregivers will be asked to record regular audio diaries of their daily caregiving experiences - which can include input from the care partner - over the course of 12-weeks. Every two weeks, during this 12-week period, caregiver participants will meet in small groups (4-5 caregivers) over Zoom to share stories and recordings they are comfortable with, and will be prompted to explore the themes that emerge by the session facilitator. Following the completion of these 6 small group sessions, caregiver participants (and care recipients, if interested) will be invited to take part in one-on-one interviews to explore their experiences of taking part in the project.

location

Vancouver Island / Coast

Lower Mainland

Thompson - Okanagan

Kootenay

Cariboo

North Coast and Nechako

Northeast

recruitment end date

2024-05-08

eligibility

Age: 20 Years - 100 Years Old

Accepting Healthy Volunteers: Yes

Research Team Information

Principal investigator

Mariko Sakamoto

health authority affiliation

Vancouver Island Health

academic affiliation

University of Victoria

collaborating organizations

University of Victoria

collaborators

Cynthia McDowell

Suzanne Ahearne

Paulina Malcolm

Matilde Cervantes Navarrete

Bruce Devereux

Debra Sheets

Nicholas Tamburri

Jim Mann

Jennifer Schine

Are you a researcher?

REACH BC can help you connect with volunteers for your research studies.

Privacy and Security

REACH BC will not release any of your personal information to third parties, participating organizations and/or other institutions. Your information will only be available to the researcher(s) after you indicate interest in being contacted about a particular study.

If you have questions or concerns, please

or view our

Michael Smith Health BC Logo

© Copyright 2022 REACH BC