Research Study
Does sharing stories and experiences of dementia caregiving help improve quality of life?
Closed Recruitment
Dementia , Other General Health , Other Men’s Health , Other Mental Health , Aging
This study hopes to capture, explore, and share the experiences of dementia caregiving through personal audio diaries and online caregiver support groups. We are investigating the combined impact of social support and storytelling on the quality of life and wellbeing of dementia caregivers and their care partners. Findings from this project will be shared with the larger dementia community through a podcast series to spread awareness.
Caregivers will be asked to record regular audio diaries of their daily caregiving experiences - which can include input from the care partner - over the course of 12-weeks. Every two weeks, during this 12-week period, caregiver participants will meet in small groups (4-5 caregivers) over Zoom to share stories and recordings they are comfortable with, and will be prompted to explore the themes that emerge by the session facilitator. Following the completion of these 6 small group sessions, caregiver participants (and care recipients, if interested) will be invited to take part in one-on-one interviews to explore their experiences of taking part in the project.
location
Vancouver Island / Coast
Lower Mainland
Thompson - Okanagan
Kootenay
Cariboo
North Coast and Nechako
Northeast
recruitment end date
2024-05-08
eligibility
Age: 20 Years - 100 Years Old
Accepting Healthy Volunteers: Yes
Principal investigator
Mariko Sakamoto
health authority affiliation
Vancouver Island Health
academic affiliation
University of Victoria
collaborating organizations
University of Victoria
collaborators
Cynthia McDowell
Suzanne Ahearne
Paulina Malcolm
Matilde Cervantes Navarrete
Bruce Devereux
Debra Sheets
Nicholas Tamburri
Jim Mann
Jennifer Schine
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