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Patient Partner Research Opportunity

Everyday Pain Experiences in Autistic Young People

Calling All Autistic Voices & Caregivers

On Hold

Health Areas

Chronic Pain, Autism, Other General Health , Other Men’s Health , Other Mental Health

Opportunity Purpose

Hello There! Autistic children and young adults are at a higher risk of pain experiences, but very little is known about how autistic young people experience everyday pain. It is important to have the input and voices of autistic folks and their caregivers to help power and guide this project to be mindful and meaningful to the community this research study will serve.

Details

What your involvement could look like? • Participating in team meetings, responding to communications, reading and providing feedback on written documents, co-creating materials (e.g. infographics, summaries, art pieces) • Sharing lived experience and knowledge of your own and/or family member’s journey with pain • Helping identify what needs to be improved to help fill in the gaps in the health care and needs of autistic children and youth.

location

Vancouver Island / Coast

Lower Mainland

Thompson - Okanagan

Kootenay

Cariboo

North Coast and Nechako

Northeast

recruitment end date

2026-04-01

eligibility

Age: 8 Years - 100 Years Old

Research Team Information

Principal investigator

Katelynn Boerner

health authority affiliation

Provincial Health Services Authority

academic affiliation

University of British Columbia - Vancouver

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Privacy and Security

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